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Not Good News after prostate biospy when MRI didn't look too bad
Prostate Cancer | Last Active: 15 hours ago | Replies (74)Comment receiving replies
Boy, I am really getting of all this waiting and not knowing! Still the PSMA Pet is 8 days away and followup with RO and the surgical doctor not until March 9th. Then who knows when they will get that Decipher test back (seems they sent it off somewhere), hopefully back prior to 9th. Haven't a clue what it is, but guess it's important. Wondering if I should get what I think is called a BRAC2 test? Maybe should ask the nurse navigator, but that would just delay things more. I don't know why they tell you all the bad stuff about aggressive with cribriform etc and then make you wait a month to discuss what to do. Then who know how long after that you wait before they start anything. Might drive me to drinking! I figure just cut that darn thing out tomorrow, if they have to put in a little OT, so be it. Then I read people that get it cut out still have issues with PSA going up and more cancer even when they don't have a prostate. I noticed the RO they assigned me just finished resident training in 2025, but the surgeon has 20 some years experience. But KUMC is a NCI-designated Comprehensive Cancer Center and only one in Kansas and surrounding area. Have to drive 150 miles round trip miles to get to it, but that is most likely better that what I would get here in Topeka KS.
Replies to "Boy, I am really getting of all this waiting and not knowing! Still the PSMA Pet..."
@diverjer Hi there welcome to the Steep Curve Learning Club. I noticed some questions you have about men having their prostate removed and still having prostate cancer. My husband went into his prostatectomy knowing he had aggressive PCa in his prostate and two nearby lymph nodes. The plan was to have the surgery and then radiate the nearby nodes. They removed the prostate and the nearby nodes. Unfortunately the PSA kept rising and a new activity was found in more lymph nodes. The thing is…the scans don’t show the micro metastatic cells. They can be anywhere at any point in the treatment process. Who knows when and what journey they have taken from the prostate to other parts of the body. Fortunately there are now treatments available for all kinds of situations. Sorry to say the waiting is unavoidable. Please know the people in this group totally understand what you’re experiencing.
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@diverjer
It’s not really a BRCA2 test. It’s an hereditary, genetic test. There are many different genes that can be found in some of them and they can cause aggressive prostate cancer problems. ATM and Lynch Syndrome are two among a number of issues that can cause real prostate cancer problems.
You should get one. It will not delay any of your recommendations. It will give more information as to what possibilities there are in the future. Some medical offices do them as a matter of standard procedure.