I struggle to understand how, in the year 2026, doctors are so reluctant to sit with patients and discuss our concerns, let alone go over what a drug actually does, how it works, and the positive benefits it could have. Don’t throw an Rx at me, tell me to inject into my body daily, then give me a wave with a, “see ya in three months.”

Give us a plan B.

Give us at-home or over-the-counter remedies to combat any side effects should they arise.

Give us sources to read that doesn’t require long, agonizing hours on Dr. Google to try and figure this out on our own.

Give us hope that if this one drug doesn’t work, another one might.

I’ve told the story before, but before I started chemo back in ‘03, a nurse sat with me, went over potential side effects I could experience, and gave me a list of OTC remedies that would prevent them or make me feel better. They all worked, every single one.

I don’t think this is asking too much.

I’m furious at drug companies for thinking these side effects should be accepted and tolerated. They have an obligation too.

I’m at the point that drug ads on TV are seriously having a very negative effect on my mind, and I don’t take any of them. The potential side effects are ghastly.

I wish I had a better answer, I really do. But I guess the most concrete one I can offer is this: Doctors, if you want us to take a drug, please let us know what we’re in for and give us a hand. It makes all the difference, and we’ll do better all the way around.

{ok, off my soapbox now}

This forum has helped me immeasurably. I’m finally ready to start Tymlos (and wouldn’t you know, neither the specialty pharmacy and my home pharmacy knows how to get this drug in my hands. 🥴😂)

Wishing everyone out there a beautiful day. 💐