← Return to NETs growing despite 3 months of capecitabine and temozolomide

Discussion
djchambers avatar

NETs growing despite 3 months of capecitabine and temozolomide

Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (37)
Comment receiving replies
Profile picture for djchambers @djchambers

@vanhauen
Next step is fulfox. I’m supposed to have port installed and infusions every 2 weeks. Also possibly a drug to restrict blood supply to tumors.
Both Dr Hobday and my local oncologist agree on this approach.

They say it’s no better than 50/50 chance this will shrink tumors.

I’m a bit unhappy but ok.

Jump to this post

Replies to "@vanhauen Next step is fulfox. I’m supposed to have port installed and infusions every 2 weeks...."
zacharycat | @zacharycat | Feb 20 11:21am

@djchambers
I had both folfox and PRRT. Pretty good response to both but PRRT is much less time consuming and didn't make me sick. Folfox got worse every time from 3rd cycle on, though not intolerable. Was afraid of hair coming out or vomiting, but nothing like that happened.

Recent article on treatment sequencing for G3 NETs-
https://www.researchgate.net/publication/395618023_Sequencing_Choices_and_Real-World_Clinical_Management_in_Advanced_Grade_23_GEP-NET_Treatment_The_Emerging_Role_of_PRRT

VIEW AND REPLY