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NETs growing despite 3 months of capecitabine and temozolomide
Neuroendocrine Tumors (NETs) | Last Active: Mar 21 2:05pm | Replies (37)Comment receiving replies
@djchambers
Would be so interested in what your next treatment recommendation will be from Dr. Hobday. Please share when you can, I also have grade 3 well differentiated and have done CapTem
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@vanhauen
Next step is fulfox. I’m supposed to have port installed and infusions every 2 weeks. Also possibly a drug to restrict blood supply to tumors.
Both Dr Hobday and my local oncologist agree on this approach.
They say it’s no better than 50/50 chance this will shrink tumors.
I’m a bit unhappy but ok.