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Successfully treated for Polymyalgia Rheumatica
Polymyalgia Rheumatica (PMR) | Last Active: Nov 9, 2023 | Replies (101)Comment receiving replies
Roland I can really relate to what you are going through. My PMR was in remission for 6 years until it came back a year ago. I am so anxious to get off the prednisone I could scream sometimes. I started at the 20 mgs and have been between 7 and 5 mgs for the past 2 months. Every time I try to taper to 5 my arms and shoulders start hurting and it seems to affect my carpal tunnel in my hands too although I don't think it's related. I went back to 7 this morning and may start experimenting with 5 mg in the morning and 1 at night to see if it makes a difference. Just have to keep going one step at time and don't give up.
Replies to "Roland I can really relate to what you are going through. My PMR was in remission..."
It looks like my problem is trying to get off the steroids to quickly. Before I try to drop my dose again I will wait another month, of what you are saying at 5 mg looks like the bottom line which it was for me. So I will stay at 10mg in the morning & 5mg at night that seems to be working for me, I guess 15 mg total in a day is ok.
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Well John yes it is frustrating. I am not working with a rheumatologist just my primary care doctor & he has other patients like me so I think he is doing me some good. He has explained to me that what he is doing would be just like me going to Scottsdale Mayo. No-one has a handle on what we have, it's just regulating our pred. No 2 people that have it can be treated with the same dose. It has to run it's course. A little discomfort I can live with if it means taking a lower of the steroids. We have to hang in there & hope it goes away.