← Return to Living with LPSVS (long post-COVID vaccination syndrome)
DiscussionLiving with LPSVS (long post-COVID vaccination syndrome)
Post-COVID Recovery & COVID-19 | Last Active: Aug 1 9:30am | Replies (200)Comment receiving replies
Replies to "I got my third of fourth Covid Vaccine 12/29/25 and my PCP told me, after looking..."
@mlillich yes, post vaccination syndrome with PEM (post exertional malaise) you might get dizzy/vertigo head fullness sensation with tinnitus? All over weakness? Shortness of breath possibly tachycardia in and off? If you look up MECFS it’s exactly like Long Covid too. I have been 5 years sick from the vaccine. Also cognitive problems with memory, concentration issues. I also get internal tremors during waking up and falling asleep or going into a crash. I just started taking Nattokinase Bromelain and ordered another vitamin which of course I can’t remember the name 😭. There is a huge campaign of cover up and/or doctors who just don’t know but for some reason can’t just say “I don’t know”. Also….if your getting rashes or pain have your doctor test your ANA. I recently got dx with Lupus SLE and Sjogren’s. The vaccine triggered an autoimmune disease in me. So the vaccine caused my immune system to go nuts. Could also be spike protein wreaking havoc as well. Good luck and don’t give up. I was bed ridden for several years and I slowly slowly improved in terms of energy. Pacing is the key. Acceptance is another challenge but you don’t have a choice. Just go with it, keep positive and know it will get better albeit very slow and over a long time 👌. Good luck! Oh and find a doctor who has an interest and knowledge. Important for your mental health with all this and those are hard to find!!
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@mlillich I think you probably want to get up and move around, even stretch and exercise as much as possible. I was inactive for too long (weak tendons discouraged movement), and my muscles started wasting. I looked awful and had lost 30+ lbs to weigh 133.
It has taken most of a year with walking, stretch bands, and kiddy weights just to start looking less like a cadaver-in-waiting and more like a very skinny human being. I'm old, so it's very slow improvement, but there is improvement ongoing with my slowly increasing workouts. I'm 141 lbs today.