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Oncocytic Cell Carcinoma with angioinvasion

Thyroid Cancer | Last Active: Jun 29 4:42pm | Replies (44)

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@ejjb
Yup - that was pretty much my reaction - well go find some then! 🤣
It was and still is super frustrating, as my lymph nodes in my neck have not subsided at all, and I really just want to know where to from here… but, all in its own time I guess.

I am so sorry to hear that you experienced the side effects like you did… I truly hoped that it wouldn’t be too hard for you. I only had minimal taste loss and also only for a few days. Blows my mind how differently we all experience similar treatments.

How are you coping mentally now? Are you more settled after having the surgeries and treatment?

I am on a roller coaster - some days I am terribly angry and frustrated and other days I have a bit of a “ so what “ attitude…🤣

Please let me know how you are doing and PLEASE keep me updated when you do go for follow up appointments.

Be safe and take care…hugs…🦋

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Replies to "@ejjb Yup - that was pretty much my reaction - well go find some then! 🤣..."

@samjdp
I'm on that same mental roller coaster, I totally know what you mean! I literally have the same cycle of really angry and frustrated at the Drs, where I want to go confront them and yell at them how terrible they are at their jobs. Then the next day I'm like "oh well I'm too tired to be mad." It's nice to know these thoughts aren't isolated.

I'll be thinking about you and if I forget to check in before your March appointment, let me know how it goes! I'm rooting for you < 3