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Oncocytic Cell Carcinoma with angioinvasion
Thyroid Cancer | Last Active: 3 days ago | Replies (37)Comment receiving replies
@samjdp
They didn't have the iodine capsules!?!??! Wow, that is frustrating!!!! Kinda want to scream at them "then go find some and bring them here!"
I just finished RAI therapy, 2 weeks out from it. They said I'd get a 30mci dose, but I ended up getting 155mci based on the body scan they did. The side effects were harder than I expected, but thankfully, most of them have subsided now. I do have lingering taste loss. Looking at other posts some say that lasts up to 6 months--which isn't fun, but just looking on the bright side that it isn't permanent.
My body scan did come back clear with no metastasis anywhere! I'll keep you in my thoughts, hoping your scan in March comes back clear too!
Replies to "@samjdp They didn't have the iodine capsules!?!??! Wow, that is frustrating!!!! Kinda want to scream at..."
PS… WHOOOOO HOOOO
for no metastasis!!!! So very happy to hear that! 🥳
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@ejjb
Yup - that was pretty much my reaction - well go find some then! 🤣
It was and still is super frustrating, as my lymph nodes in my neck have not subsided at all, and I really just want to know where to from here… but, all in its own time I guess.
I am so sorry to hear that you experienced the side effects like you did… I truly hoped that it wouldn’t be too hard for you. I only had minimal taste loss and also only for a few days. Blows my mind how differently we all experience similar treatments.
How are you coping mentally now? Are you more settled after having the surgeries and treatment?
I am on a roller coaster - some days I am terribly angry and frustrated and other days I have a bit of a “ so what “ attitude…🤣
Please let me know how you are doing and PLEASE keep me updated when you do go for follow up appointments.
Be safe and take care…hugs…🦋