← Return to Neuroendocrine Pancreatic Tumors with KIT Missense Variant Exon 10 GOF

Discussion
Comment receiving replies
Profile picture for mmar2025 @mmar2025

@tomrennie The PRRT was not bad at all. My skin is sensitive and I have to be careful when scratching since I do itch. The skin will break very easily. I am being more careful and using lotion. Very tired for three or four days. The geiger counter read 110,000CPM while now sitting on my liver. It is down into the 20,000's after a week. It is supposed to read 100 or less. Note: It is not a medical appropriate device. It does start making a warning sound even when I'm in another room. It makes you feel all warm and fuzzy! (I'm being sarcastic.) It would be nice to know if anything is working, but we all have to wait it out. The worst dilemma is the constipation. PRRT and a lanreotide injection will do that. So, all and all, things are 👍okay. Thank you for asking.

Jump to this post


Replies to "@tomrennie The PRRT was not bad at all. My skin is sensitive and I have to..."

@mmar2025 Have you tried anything for the constipation? Progress comes slowly. But, you are doing what you have to to get good results. Keep moving forward with a positive attitude and good things will happen. Also, thanks for clarifying your sarcasm. I didn't know, if I was allowed to laugh or not. It was funny.