Hello All!
The replies are appreciated!
I have a strict day to day routine, I go to bed at the same time , get up in the morning at the same time and have arranged my daytime activities accordingly. Fortunately my work schedule is flexible enough for me to arrange it also. I do not share my condition to my fellow employees as the nature of my work would preclude this.
I have had a couple of hallucinations, but my biggest hassle with Lewy body is the epic dreaming. My nights are spent dreaming about 80% of the time and I wake up feeling like my mind has gone through a wringer. I tried klonopin, but the morning after hangovers interfered with my day.
I enjoy building scale models, planes, ships etc to help keep my mind flexible. I do find myself envious of “normal” people, those who do not have my concerns. Keeping busy also helps me to focus on other things in life , as I have noticed that such a disease can quickly overtake every aspect of your life.
I am currently enrolled in various research studies which I feel positive about, these include pet scans and MRI scans and the ever popular spinal tap.
I am 63 and still drive mostly to work and back. I forget names , appointments, medications and have a devil of a time following movies .Documentaries , however, are easy for me. Thanks again for the posts, Regards, Ashley