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ejjb avatar

Oncocytic Cell Carcinoma with angioinvasion

Thyroid Cancer | Last Active: Feb 19 12:05pm | Replies (22)

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@ejjb

Hey! Good to hear from you.
Still no scan. I’m due for full blood works again on the 01/03, then seeing the Dr on the 11/03 to book the scan. Very frustrating. The hospital didn’t have the iodine capsules for the scan 😡

How have you been keeping and where are you at with treatments now?

Huge hugs to you. 🤗

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Replies to "@ejjb Hey! Good to hear from you. Still no scan. I’m due for full blood works..."

@samjdp
They didn't have the iodine capsules!?!??! Wow, that is frustrating!!!! Kinda want to scream at them "then go find some and bring them here!"

I just finished RAI therapy, 2 weeks out from it. They said I'd get a 30mci dose, but I ended up getting 155mci based on the body scan they did. The side effects were harder than I expected, but thankfully, most of them have subsided now. I do have lingering taste loss. Looking at other posts some say that lasts up to 6 months--which isn't fun, but just looking on the bright side that it isn't permanent.

My body scan did come back clear with no metastasis anywhere! I'll keep you in my thoughts, hoping your scan in March comes back clear too!