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Gleason 9; GG5 with mets here, so no surgery. ADT/ARSI and IMRT for treatment. No improvement in urinary retention. In my case it's not reluctance, the valve is closed. Been using catheters since last April. There have been suggestions for correction, however, no one has guaranteed 100% continence afterward. I'm not willing to take a chance, however slight, on moving from 100% continent to maybe not. Tried drugs (Flomax, etc.) without success. I'm so used to intermittent catheterization at this point that it's just part of life now and certainly better than pads or diapers. Best wishes for an acceptable solution.

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Replies to "Gleason 9; GG5 with mets here, so no surgery. ADT/ARSI and IMRT for treatment. No improvement..."

@mjp0512 I’ve been on a catheter since mid November. No surgery at age 77 with other health problems. Been on Orgovyx for almost a year and it’s keeping me alive so far. I know what you’re going through. Good luck and I hope things turn out well for you.

@mjp0512 Could you explain how you do this many times per day? I have always been catheterized by someone else either before/after a procedure - and usually with lidocaine gel.
Do you use this? I know it must be done, but there’s something about holding a slim tube in my hand and thinking, “OK, now slide this up my pecker until I reach the bladder”.
How the hell do you do it??😬Thanks,
Phil

@mjp0512 Sounds very familiar. At 74 yrs I developed hydronephrosis (urine backing up into the kidney) in June, 2022, which led to a PC diagnosis. Tumor was out of the capsule and into surrounding lymph nodes and a spot on RT iliac, so no surgery or proton. IMRT, SBRT and ADT. The foley catheter that was inserted to decompress the hydronephrosis was left in (change every 4 weeks) during radiation and upon completion I tried intermittent catheterization. That was a no-go from the get-go. The first day I went through seven (7) catheters in about 14 hours and went back to the Uro office to have the foley put back in. Dr. did a cysto and said my bladder had shrunk, probably from the radiation. I will have this foley-friend for the duration. It's no big deal as long as great care is given to cleanliness. The plus side is I never have to get up at night to pee! 🙂