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Newly diagnosed osteoporosis and have cried every day this week
Osteoporosis & Bone Health | Last Active: Feb 27 6:32pm | Replies (80)Comment receiving replies
Hello to all of you beautiful strong ladies.
For me, Evenity was my first choice as its monthly injection. But the heart warnings aren’t worth it to me. I’m 70. Fairly healthy. I’d like to say, osteoporosis isn’t a death sentence. I’ve had 4 vertebral fractures in a year. My score isn’t that terrible but the amount of fractures tells us my spine isn’t strong. If I have another back fracture Dr says I’ll be in a wheelchair. I’ve taken care of my mother of 10 yrs and had to put her in a nursing home because if I move the wrong way, my back fractures. She passed this last week. I feel so guilty I could no longer care for her. (She couldn’t walk any longer) just pushing the wheelchair hurt my back. I’m in pain all the time.. but here’s the good news..
Tymlos, PT, and light exercise has changed the direction I was going in. Injections every night is a commitment.
But I feel stronger and I’m done getting injections that only help for awhile until I do some gardening or house cleaning. I’ve been on Tymlos for 5 months, I feel stronger. (I hate the injections) ! After 1 yr I will follow up with Prolia for the duration of my time here on earth.
Get your spirts up ladies, we’ve been through worse!
Warm Wishes, E
Replies to "Hello to all of you beautiful strong ladies. For me, Evenity was my first choice as..."
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@eileenvan
What a great attitude.
I have a disease which is tied to a high suicide rate because of the pain of the condition. The osteoporosis diagnosis never hit me that hard because of the context of it within my life and this other disease. I just saw/see osteoporosis as a battle to be waged and controlled. A disease that I was lucky enough to be able to control with strontium and BHRT.
But there are cases of osteoporosis, such as yours, which are more than challenging and which affect our lives desperately. You are a light to us in the midst of your challenges. Thank you.
Just for context, eileen, what is your endocrinologist saying is causing your osteoporosis and your fractures?
I ask because usually strontium or pharma drugs will handle normal, driven by age osteoporosis. It is usually just a disease, conditions or steroid drug driven osteoporosis which can be so resistant to drugs or strontium.
Or...
Then of course you can have fractures which are driven by the osteoporosis drugs of which Evenity is one of those, but usually in the femoral area rather than the spinal area with Evenity So your case doesn't sound like Evenity side effects. But maybe a previous osteoporosis drug, like Prolia would cause spontaneous spinal fractures.
Luckily, in an 18-month study, Tymlos reduced the risk of vertebral fractures by 86% and nonvertebral fractures by 43% compared to placebo. So hopefully, this drug will end your spinal fractures.
Thank you for your information which will help us all and for your great attitude.