I have had CES for 12 years. Im 53 , and had been improving the last 4 years. I went off SSDI and Medicare and went back to an office job full time. Now, a year after getting all that done, my symptoms are getting worse every day. Started with the leg pain, then bladder incontinence, then bowel incontinence, and pretty severe pain in the lower back area. Now I'm at a loss once again as to what to do or where to go for help. I felt like I had gotten the best I could get and hoped it would stay that way. Anyone else have a swing in symptoms like this? Am I going to end up self catherizing again? So scared, and no one understands! Any info would help.