Connect
← Return to Found out my wife's Neurologist doesn't want to see her again.
Discussion
Found out my wife's Neurologist doesn't want to see her again.
Caregivers: Dementia | Last Active: Feb 21 6:43am | Replies (12)Comment receiving replies
Danl,
I'm so sorry you are getting such negative messages from your wife's doctor. The doctor should have told you both in person herself! However, before you go to pallative care it might be a good idea to see another doctor just to be sure what the diagnosis really is.
My husband had lung cancer. They sent him to pallative care when he refused to have anymore Keytruda or Chemotherapy treatments because of the terrible side effects he experienced. Pallative care is for those who are dying. However, my husband lived another 10 years!
Also give your problems up to God. He will direct you and your wife in the right direction. I'll say a prayer for both of you.
I wish you the best.
PML
Replies to "Danl, I'm so sorry you are getting such negative messages from your wife's doctor. The doctor..."
Connect
@pml
I just wanted to clarify something about palliative care. It is very different from hospice, which is prescribed for those who are no longer treating a terminal illness. Palliative care is sometimes called comfort care. I have had 3 relatives in palliative care and all 3 lived many years beyond entering that level of care. For my husband, one of the pieces was balancing eating food he enjoyed with the risk of aspirating. We learned strategies that allowed him to live a life with some enjoyment rather than being so strict that he had nothing to look forward to. The focus was on a higher quality of life and that was a relief to both of us.
I hope you find the same level of help that we did.