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SusanEllen66 Susan McMichael avatar

Support Group for Those of Us Living With Mild Dementia

Aging Well | Last Active: 17 hours ago | Replies (373)

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Those of us Living with mild dementia.!
Hi my name is Craig and I’m living with MCI/ Mild Dementia.
Well i come here to read others experience, strength and hope and remind myself i am not alone in this, i learned this in the rooms of NA and AA for many years.
I am getting to the point where i need to focus on shorter periods of time instead of tomorrow or next week, i focus on the next :30 minutes or even 5 minutes. Not all the time but today it was.
I do a lot of note taking; checklists in particular as i may forget what i was doing while I’m doing it.
So i look at my list and recognize what i was doing and pick back up.
This was very apparent today and for that i am Grateful.
I am grateful that i am aware, maybe not in the moment but at some point i am aware of my deviation.
I share these things; my experience, strength and hope because today was a rough day but i made it through.
I am trying to stay positive and fight off depression because where there is comfort in depression, there is no progress and depression has a terrible way of pulling me in making me think it is a safe place to be, but its not.
I suit up and show up each day, no one day is like the others. Never knowing what level of clarity (cognitive ability) i will have at any given moment.
My mind fades sometimes and find myself in the middle of a room where i must have just been staring at God knows what for how long in a daze.
Found myself standing at my bathroom sink eating a slice of pizza; its like i come out of a little dream or something.
Can you relate to any of this ?
Enough about me.
Thank you all for your experiences
Craig

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Replies to "Those of us Living with mild dementia.! Hi my name is Craig and I’m living with..."

craigbyrom
We are much alike in the memory/cognitive realm. I used to get disgusted with myself because my memory was failing (forgetting why I went to the kitchen, for example, or not being able to find a particular object which has always been in the same place, etc. I have been trying to keep a small note book with me to jot down ideas, problems as I go through the day, but even that gets old (PITA). Living alone I don't have to answer to anyone but when out with others I sometimes feel they are judging me. I'm learning to say to myself 'So what? This is me - take me or leave me'. I never thought I'd get this old (85) and now that I'm here I have to take the good with the bad.

@craigbyrom hello Craig, in some ways I feel like I know you. The AA phrases you used brought back conversations that I had with my former husband. He uses the “suit up and show up” when he has to go to work.
A gratitude list is something we can consider doing if and when someone helps us. A caregiver has a thankless job so a list we can share with them would be a blessing for both.

For me, MCI in combination with other neurological disorders has really disrupted my life. I keep myself busy by painting, working jigsaw puzzles, and searching for bargains…

I’m glad you found us.