Hello and thank you to everyone for your thoughtful responses. I'm not sure I explained my situation very clearly. I've been getting routine psa tests for 20 years. Levels started in the 2.5 range and gradually increased over the years in small increments. But it never went down and was never below 2.5
In July 2024 a routine psa test was performed. It was 6.19. Six months prior my level was 3.8. So, my Dr sent me to a urologist who performed a biopsy and I was officially diagnosed with prostate cancer which I described in my first post. 3+3 low risk. I've been on active surveillance since. No treatment. Getting psa levels and exam every 3 months. My levels have consistently decreased, with most recent being 4.8. I know this doesn't really indicate anything positive but it's better than increasing. However, after my most recent level came back 4.8 the office called me and said it had jumped from 0.21 on the previous test. I asked for an explanation, and she said she would send the Dr a note. He never responded. So, I'm frustrated because I don't believe that 0.21 was an accurate test result. I didn't know about it because I didn't bother to look at that particular one. I made the mistake of assuming they would call me if anything was amiss. Why didn't they call me back in to have a retest back then? Didn't they think it was weird to go from 5.3 to 0.21? I've lost some confidence in my Dr which I was already questioning to begin with, due to certain comments made in the past.
I have an appt in March. It will be 18 mos. since dx. I know he will want to do another biopsy. I am going to ask for a mpMRI and decipher test on the samples. I am exploring my options as best I can. I have VA medical benefits and am getting Community Care which means I have a civilian Dr, but I have been unable to make contact with them to find out if I can switch to a different urologist if I'm unhappy with my current one. I will post an update in case anyone is curious to know what happens. Thanks again and Best Wishes to everyone!