Replies to @tweetypie13 as mentioned I am under the care of a Rheumatologist. I was just trying to...

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Polymyalgia Rheumatica (PMR) | Last Active: Mar 5 11:55pm | Replies (101)

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@pah17

@tweetypie13 as mentioned I am under the care of a Rheumatologist. I was just trying to get an idea of what to expect in terms of what's considered an acceptable pain level to know when it's time to titrate down. Thank you for sharing your story.

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Replies to "@tweetypie13 as mentioned I am under the care of a Rheumatologist. I was just trying to..."

gypsyrozbud | @gypsyrozbud | Mar 5 5:12pm

@pah17
I had the same issue, ie, not really knowing how much pain was acceptable….my doc was of no help whatsoever…he recommended Tylenol which doesn't touch the pain!

I joined another forum HealthUnlocked…. PMRGCAuk which is run bu actual PMR sufferers. I got a definitive answer to up my pred dosage from 5mg to 10mg becuse i had tapered way too fast! Wow! I have never felt better since i was first diagnosed and been taking prednisone!
Anyway, check out their forum…they are very kind and helpful people!

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