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Has anyone experienced 'Airway Remodelling'?
MAC & Bronchiectasis | Last Active: 2 days ago | Replies (27)Comment receiving replies
@narelled23 I'm not a doctor, so I don't try to interpret test results, even my own.
It does sound like something besides bronchiectasis is going on - I have friends with idiopathic pulmonary fibrosis (IPF) and interstitial lung disease (ILD) diagnoses in addition to bronchiectasis - perhaps that is where all of your testing is leading the doctors.
Are you in the care of a good pulmonary specialist? This looks to be way beyond the scope of either a naturopath or general practitioner.
PS Even as a strong supporter of complementary and alternative medicine, I have huge skepticism about dermal testing for diagnosis of infections. Any single machine or test that purported to diagnose a wide range of maladies has always been proven by science to be wrong.
Replies to "@narelled23 I'm not a doctor, so I don't try to interpret test results, even my own...."
@sueinmn Reading about your friends that have other lung diagnosis plus Bronchiectasis opened my eyes and put me in a sate of wonder.
I wonder which was diagnosed first for them.
I wonder if the Bronchiectasis followed, developed afterwards or vice versa.
I wonder if one leads to the other?
I wonder if the medical profession knows the answers.
I tried finding information regarding my " I wonders" but all just explain the lung problem, the symptoms etc. with each disease.
It appears that most of the same tests that are performed for Bronchiectasis also help to diagnose idiopathic pulmonary fibrosis and interstitial lung disease.
Also, here in Oklahoma at OU Medical Center OKC they have a doctor that has just recently been approved to concentrate on Bronchiectasis and ILD patients. I was referred to her by my local pulmonologist who has worked for some time with patients and their doctors from either Tyler or NJH. I am not sure if OU Medical Center is working on becoming a center of excellence but I will find out in March with my first appointment.
Barbara
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@sueinmn
This is my fear...may I ask how your friends cope with this mix of disease?
I have been in the public system but have just now seen a private pulmonary specialist and next appt in around 2 months.
I am trying to pre-empt his diagnosis by trying to get in to see an immunologist before next appt...as I suspect that will be his next suggestion to try to find what is driving this.
Appreciate your input, Sue.