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Increasing breathing difficulty with Keytruda

Lung Cancer | Last Active: Apr 8 11:53am | Replies (12)

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@lls8000 thanks so much for your reply. I have contacted my oncology team and am currently being examined. I did find when I am breathless my blood oxygen is about 85. Glad to meet a fellow pickleball player! It is so much fun! I hope I am able to play with more enthusiasm soon!

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Replies to "@lls8000 thanks so much for your reply. I have contacted my oncology team and am currently..."

@curiouskitty
I have finally heard about someone with my same problem.
I started keytruda in 2021 for stage 4 metastasized melanoma in my lung.. I will have to be on it the rest of my life.
Not long after starting treatment I became breathless. I have suffered for 5 years and believe me my quality of life is awful.
I cant walk 20 feet without feeling like I am taking my last breath. BUT as soon as I sit I am the picture of health.
I have argued with my heart doctor ( keytruda damaged my heart) my lung doctor and my oncologist. Noone seems to be concerned.
My oxygen levels drop to 83 and I do a breathing treatment or just sit down. I cant do anything around the house so I had to hire help. .my oxygen levels are monitored from home also. The strange thing is I go back to 97 oxygen lever when I sit. Is this the same for you.?
I dont know how I will make it being on it till I die.
I was also told that my lower back pain has arthritis from 2 previous surgeries. Keytruda attacks the arthritis and causes this pain.
Please let me know what your doctors say about it.
You are so blessed to be getting off it even though it is a miracle drug and I wouldn't be here without it.