Hi Cynthia, i was diagnosed in 2024 with metastatic para-aortic adominal paraganglioma. Was found on a biopsy for suspected Lymphoma. Obviously shouldn't have been biopsied, but that's whatever now. Treatment has been slow going for me. It's actually been a mess and I've been fumbled. They are currently deciding if hail mary surgery is the go to for me. Otherwise...we don't know. Was wondering how your treatment was going? I've not found anybody with similar paraganglioma to me, think you're the closest. If you reply, thank you!