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DiscussionAnyone have pancreatic neuroendocrine tumors with carcinoid syndrome?
Neuroendocrine Tumors (NETs) | Last Active: 7 hours ago | Replies (11)Comment receiving replies
Replies to "@hopeful33250 Yes, absolutely."
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@fim I have a pancreatic neuroendocrine tumor with metastasis to the liver and bones. I do not get lanreotide shots nor do I take Xermelo. When I was diagnosed, I had cachexia. My pancreatic tumor was blocking some veins causing me a lot of digestive issues. Once the tumor decreased in size from chemo, my issues started to improve. Is there a treatment plan yet to help you manage the cancer?