← Return to Anyone have pancreatic neuroendocrine tumors with carcinoid syndrome?

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Replies to "@hopeful33250 Yes, absolutely."

@fim I have a pancreatic neuroendocrine tumor with metastasis to the liver and bones. I do not get lanreotide shots nor do I take Xermelo. When I was diagnosed, I had cachexia. My pancreatic tumor was blocking some veins causing me a lot of digestive issues. Once the tumor decreased in size from chemo, my issues started to improve. Is there a treatment plan yet to help you manage the cancer?