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Severe chronic pain and Intrathecal pain pump

Chronic Pain | Last Active: Mar 24 9:25am | Replies (60)

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Profile picture for qwete @qwete

Recently undergoing the same horrible experience from the Flowonix Pain Pump I received two years ago. The first Neurologist that was filling my pump with Morphine, I was having massive side effects and would not listen to me..months of hell until I instructed him to remove the drug completely out and fill me with saline until the actual surgeon located me a new Pain Management Specialist to take over. Within two months was referred and when this specialist realized who the other physician was, he was heated and nothing good one bit.
Remind you I have a severely complicated system and body does not react to many medications like others does. Also live with a few Autoimmune Diseases and some of these doctors needs to enroll back into school.
Moving on with this pump, new doctor began me on little doses of Diludid, in the mean time I kept complaining about my Neuropathy, keep getting told it’s from diabetes.. after a while I wasn’t buying it because my diabetes has been well under control for over five years and never experienced such pain that began increasing after this pain pump was implanted.
My last refill the next day I suffered so badly I could barely walk, my lower back above my tailbone was so bad even to the touch, pain down my legs and left hip same side this pump is on. I couldn’t lay on that side without getting out of bed almost to fall to the floor.
I did inform the NP this pump is the cause of this severe neuropathy and it’s pushing against nerves.
Now I’m getting sent to a MRI which the medication has to be drained out for the test. Guess what? After this test I’m demanding saline until I can get this darn pump removed..had nothing but hell since. No doctors will discuss any faults or failures on what can happen. Only give patients false hopes. Not getting into the urinalysis delay I get after refills, an Ultrasound for that.
Advice anyone who’s considering these pain pumps please do big time research and not just the positive feedback that comes from the makers nor doctors

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Replies to "Recently undergoing the same horrible experience from the Flowonix Pain Pump I received two years ago...."

@qwete Sorry to hear of your difficulties. I'm a little confused. Did you have a trial before getting the permanent implant? If so, did the morphine work well? My trial with morphine produced no pain relief. I had a second trial with hydromorphone that did a good job of reducing my pain. That convinced me to get the implant. I hope you are able to find relief somehow.