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Twitching on all limbs. Involuntary spastic twitching 24/7.

Posted by ennaoj44 @ennaoj44, Feb 14 9:28am

For a few years now, I have experienced involuntary twitching in hands, arms, legs and feet in every position--sitting, laying down, etc. When family members hold my hand they too can feel the twitching response in my hand. My pcp and others are have not provided a diagnosis or treatment. I do have pernicious anemia and receive weekly B12 injections. Is there a treatment available? Anything new that would keep my limps from jumping?

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spreels2 | @spreels2 | Feb 16 10:52am
In reply to @heisenberg34 "@spreels2 I'm glad to hear that you are no longer jerking. What is OSA? I am..." + (show)
Profile picture for heisenberg34 @heisenberg34

@spreels2 I'm glad to hear that you are no longer jerking. What is OSA? I am trying to make an appointment with a new pain management group. My current PM doc advertises as a pain clinic, but it's just him, and he does little for me except to increase my pump output every so often. My jerking is a puzzle. If I can get this appointment, I think they have a fairly extensive staff. I am also hoping that they will actually listen to me and look deeper into my pain... and this jerking. Keep well and be blessed.

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@heisenberg34 It's for Obstructive Sleep Apnea...

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heisenberg34 | @heisenberg34 | Feb 17 8:00am
In reply to @spreels2 "@heisenberg34 It's for Obstructive Sleep Apnea..." + (show)
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@heisenberg34 It's for Obstructive Sleep Apnea...

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@spreels2 Thanks. Good to know.

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michanthony12 | @michanthony12 | Feb 17 3:36pm
In reply to @aldommeyer "Hello, I have had similar symptoms, mostly with my legs, and when first laying down in..." + (show)
Profile picture for aldommeyer @aldommeyer

Hello, I have had similar symptoms, mostly with my legs, and when first laying down in bed. Sometimes before bed if I stay up later than normal. Then I started having the same when flying in an airplane with tight quarters. And then recently my arms started jerking when I laid down. My doctor diagnosed as Restless Legs Syndrome.
You may look into this as it's fairly common.

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@aldommeyer
Greetings very sorry of the symptoms you're experiencing. I too have the same dealing: taking pregabalin 75gm had to be increased, Vitamin B complex helps and there's capasin cream 25% to help on the skin.
RLS the pregabalin and neuropathy. I had to learn to switch to a high fiber foods your Doctor may direct you in other ways. I also drink packets of electrolytes powder just add water, it helps calm down cramps and twitching.
Hope this may help
Thanks, have a wonderful day

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aldommeyer | @aldommeyer | Feb 17 4:12pm
In reply to @michanthony12 "@aldommeyer Greetings very sorry of the symptoms you're experiencing. I too have the same dealing: taking..." + (show)
Profile picture for michanthony12 @michanthony12

@aldommeyer
Greetings very sorry of the symptoms you're experiencing. I too have the same dealing: taking pregabalin 75gm had to be increased, Vitamin B complex helps and there's capasin cream 25% to help on the skin.
RLS the pregabalin and neuropathy. I had to learn to switch to a high fiber foods your Doctor may direct you in other ways. I also drink packets of electrolytes powder just add water, it helps calm down cramps and twitching.
Hope this may help
Thanks, have a wonderful day

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@michanthony12
Thank you, I have been helped by low dose of ropinirole (requip) before bed, and do use electrolytes when traveling. Best wishes to you.

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heisenberg34 | @heisenberg34 | Feb 19 9:20am
In reply to @michanthony12 "@aldommeyer Greetings very sorry of the symptoms you're experiencing. I too have the same dealing: taking..." + (show)
Profile picture for michanthony12 @michanthony12

@aldommeyer
Greetings very sorry of the symptoms you're experiencing. I too have the same dealing: taking pregabalin 75gm had to be increased, Vitamin B complex helps and there's capasin cream 25% to help on the skin.
RLS the pregabalin and neuropathy. I had to learn to switch to a high fiber foods your Doctor may direct you in other ways. I also drink packets of electrolytes powder just add water, it helps calm down cramps and twitching.
Hope this may help
Thanks, have a wonderful day

Jump to this post

@michanthony12 Are you sure that you mean 25% Capsaicin cream? I just bought 0,1% and it caused an intense burning on my feet. I think 25% might put you in the ER.

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rpr13 | @rpr13 | Feb 20 6:06pm

Before you look at adding meds or supplements to reduce the twitching have you ruled out all your current meds and supplements that have the potential to cause the twitching? Even if you have a condition that can cause muscle twitching, that’s circumstantial and it doesn’t rule out other potential causes.

For example, B6 can cause muscle twitching. I can tolerate the RDA (barely), but anything above that and I get bad muscle twitching.

Another example is THC. If you’re taking gummies, edibles or anything else perhaps to help with sleep, that could be contributing as well (sativa strains are more likey to cause this than indica strains).

Our medical system makes it way too easy to ignore diagnostic root causes and just keep stacking meds. Anti-depressant not working? Don’t stop it or try a different one, just add another one on top of the one you’re currently taking. TD from anti-depressants? Don’t stop it or try a different one, just add this additional Rx which might reduce the TD at the expense of an entirely new list of its own side effects. It’s insidiously harmful.

So before you seek a new treatment/med/supplement, first make sure you’re not putting anything in your body that might be causing the twitching that you might be able to do without, or reduce the current dosage.

I hope you figure it out.

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