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Vaginal Sling (TVT) Complications

Women's Health | Last Active: Mar 20 4:37pm | Replies (28)

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Profile picture for Janell, Volunteer Mentor @jlharsh

Hi @lmprap , and welcome to Mayo Clinic Connect! I am so glad to see you join this discussion and begin sharing experiences with others about Vaginal Sling Complications. Looking at pain that may be pudendal neuropathy in addition to two surgeries in two years and navigating a bulging disk is a lot to deal with.

You may be interested to connect with @leigho55 who originally created the discussion, Anyone out there diagnosed with Pudendal Neuralgia?
https://connect.mayoclinic.org/discussion/anyone-out-there-diagnosed-with-pudendal-neuralgia/
You mention not expecting your life to be the way it is. This resonates with me. I remember being so, so sad because of unmet expectations. It was helpful to go through the process of identifying expectations I had that really were unrealistic and letting them go. Those were the easiest to deal with and they were noise for those that remained. I do have expectations that will not happen and had to learn how to grieve them. It has helped. I coordinated a family zoom for a time and we walked through a couple books together that everyone really did like. You may want to check them out, written by Ted Bowman. They are Loss of Dreams: A Special Kind of Grief, and Finding Hope When Dreams Have Shattered both encouraging and easy to read. I ended up contacting the author when I had difficulties finding the books and he was extremely helpful.
- Ted Bowman https://bowmanted.com/books/

Do you mind sharing a bit more about your pain and how it is affecting you? What is the most difficult for you?

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Replies to "Hi @lmprap , and welcome to Mayo Clinic Connect! I am so glad to see you..."

@jlharsh
I have not checked back onto mayo connect portal for a few yrs now, until yesterday. My pudendal neuralgia that took three yrs to diagnose has been life changing for me and very painful, exhausting and emotionally draining and mentally difficult. I have not met anyone else who has PN and it is a very isolating disability. Pain medication when needed is the only relief for me and my sanity. I have been wearing a gel-horn pessary for a good four yrs now after trying about eight different pessary’s that did not work well at all. Prolapse and PN is a horrible medical condition.

@jlharsh I will begin my story.... It it long and painful ....