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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Apr 13 6:46am | Replies (231)

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Profile picture for bouf1948 @bouf1948

@ameliae I go to the doctor Tuesday - he only sees patients Tuesdays. He has experience with Paget’s - he was listed as distinguished on Mayo Clinic’s list of doctors. I’m praying I can use the cream only. I’ve been using all kinds of creams, like steroid creams, diaper rash creams, Vaseline, but none of them worked. If I do nothing, it’s better. I’m glad the cream worked for you!

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Replies to "@ameliae I go to the doctor Tuesday - he only sees patients Tuesdays. He has experience..."

@bouf1948 Question is: for the doc - is the Pagets estrogen mediated? It can mean the difference between huge surgery and not.