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Vaginal Sling (TVT) Complications

Women's Health | Last Active: Mar 20 4:37pm | Replies (28)

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Profile picture for lmprap @lmprap

I myself had a hysterectomy in my late 40’s, and the last two years I’ve had two vaginal surgeries. One for anterior , the second for posterior prolapse.
I also have a disc bulge pressing on traversing right S1 nerve root.
Also pain which may be pudendal neuropathy. I’ve been to two urogynaecologists , a pain doctor, two neurologists and have yet to find any relief.
I’m not to bad in the mornings, but by afternoons I’m in quite a bit of pain. I’m hoping to find someone or something that can help me soon. I’m sending hugs your way as well. I did not expect my life at 63 to be this way either 😢.

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Replies to "I myself had a hysterectomy in my late 40’s, and the last two years I’ve had..."

@lmprap - I am very sorry to hear this. I myself find mornings are usually better and by 3/4pm I’m usually a write off. I am currently going through 15 rounds of laser therapy to a max of 24 sessions. I have noticed a bit of relief but it usually takes until sessions 9 to notice the biggest change and I’ve currently done 6. It requires 3 sessions a week and I’ll be going into week 3 as of Tuesday. I’m addition severe hip bursitis is still present from a current ultrasound done last week so we will be redoing the injection into the hip and completing nerve burning on the si. Should the burning be successful, next setup is surgery on the SI. In addition, my team at TAPMI is now looking into removing the mesh and if doing so will change things. The opinion is when you have such a hot spot ie. severe pelvic nerve pain, operating could make it worse instead of better so this is being investigated. I’ll be honest, CBD/THC gummies at night have been my saving grace recently to sleep. I’ve just started a low medication “low dose naltrexone”. I can give you an update on whether I’m noticing a change with it since I’ve found pregabalin did nothing once I’ve taken it for a couple weeks. Sending you 🤗 and appreciate you sharing your story! 💜

Hi @lmprap , and welcome to Mayo Clinic Connect! I am so glad to see you join this discussion and begin sharing experiences with others about Vaginal Sling Complications. Looking at pain that may be pudendal neuropathy in addition to two surgeries in two years and navigating a bulging disk is a lot to deal with.

You may be interested to connect with @leigho55 who originally created the discussion, Anyone out there diagnosed with Pudendal Neuralgia?
https://connect.mayoclinic.org/discussion/anyone-out-there-diagnosed-with-pudendal-neuralgia/
You mention not expecting your life to be the way it is. This resonates with me. I remember being so, so sad because of unmet expectations. It was helpful to go through the process of identifying expectations I had that really were unrealistic and letting them go. Those were the easiest to deal with and they were noise for those that remained. I do have expectations that will not happen and had to learn how to grieve them. It has helped. I coordinated a family zoom for a time and we walked through a couple books together that everyone really did like. You may want to check them out, written by Ted Bowman. They are Loss of Dreams: A Special Kind of Grief, and Finding Hope When Dreams Have Shattered both encouraging and easy to read. I ended up contacting the author when I had difficulties finding the books and he was extremely helpful.
- Ted Bowman https://bowmanted.com/books/

Do you mind sharing a bit more about your pain and how it is affecting you? What is the most difficult for you?