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Anyone else feel Isolated and not go out due to chronic pain?
Chronic Pain | Last Active: Feb 22 2:36pm | Replies (134)Comment receiving replies
@charliegirl Thank you for being helpful. However, I live in Alaska, small town with 2 pain clinics, both part-time as they are based in Anchorage. Both of them said I was "drug seeking" I was crushed. I hadn't mentioned any kind of medication. I did go back to 1 and had an epidural steroid injection, I had high hopes, but that failed. Now they, Neurologist, and Primary Care Physician want me to get a spinal stimulator, without even TRYING any stronger medication. I'm going to Anchorage for the consult, and I'll do the trial, I would do anything at this point. But it boggles my mind that they jump from using off lable antidepressants to an invasive surgical intervention. I realize that opiods not used correctly are bad, but this disease is lifelong. It seems to me they would let me try something. This kind of thing is why the suicide rate of chronic pain patients has gone way up since "the war on drugs" maybe I'm feeling sorry for myself, but I have tried so many meds and home remedies that people would laugh.
Replies to "@charliegirl Thank you for being helpful. However, I live in Alaska, small town with 2 pain..."
@cynbell I am sorry you are suffering. I do understand how a small town can feel. I was lucky to find a small town PCP who worked with me to get my meds just right. I also take the Cymbalta and Nortriptyline antidepressants that are 'on label' for treating pain as well as the depression that comes from chronic pain. I have always been open to any medicine and home care options. I have spend 26 years learning and reading every valid book about fibromyalgia and chronic pain. Because I have been open to other meds and not just opioids, I have received the opioids I need. Muscle relaxers are very helpful for pain conditions. There are many of those you could read about online. Then offer that info to your doctors, as an option. If you are ONLY open to pain medications, you might not get the help you need as far as medicine. I take Arthritis strength Tylenol, which is extended release and awesome! I take one Aleve daily. I use Salon Pas pain patches on worst areas, and Aspercream, and Lidocaine lotion. I have to do all these things in order to have a tolerable day. I truly hope you get some help because I know you are suffering, Sending an air hug to you!
Lori
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@cynbell It does not matter if you are from a small town or big. I live in the greatest city. My backyard has the Cleveland Clinic, University Hospital, Metro Health, and Suma. I am now 58 and live in severe chronic back pain due to a spinal fusion gone wrong. I have done it all. CT, MRI, spinal injections, scrambler, Ketamine infusions, PT - which was painful. I went through all as I have excellent insurance and was able to go to each hospital to get multiple opinions from every profession you can think of. They recommended the spinal stimulator which I refuse as I also have Fibromyalgia. Any type of electrical stimulation intensifies my pain if you could believe it. I am very isolated and I can believe how this wears down your soul. I am seeing a therapist which really helps. She tries to help me see more to life than just watching life go by without participating in it. Her solution is a slow one as it takes money to become more mobile. I wish we had some type of support group for people with chronic pain who can related to my anger, frustration, loneliness and tears. God Bless you but please keep your head up as for me there were just dead ends. Maybe you will find the magic thing that works.