I’ve had bad side effects with most Osteo meds.
Recently had severe muscle, leg cramps and body aches with Tymolos. On it 2 months. My endocrinologist now gave me option of trying Forteo, or Evista. I’m running out of options. I’m unable to do weight bearing exercise as I have tear in my shoulder. I did them andOsteostrong for several years. My bone density showed very slight improvement but at least didn’t worsen.
I’m wondering if any of you have switched from Tymolos to Forteo and if anyone tried Evista.
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Fili123, I haven't tried Tymlos. But am on the similar Forteo and quite like the drug because I haven't had any side effects at all. So without even answering your questions, I can recommend the medication.
Tymlos is four times as much drug, though they aren't exactly the same. And though it does sound as though you had effects from a maybe too high dose of Tymlos which may have been non-existent with titration, as your body might have had time to adjust, Forteo might be a better bet.
Bless your choice. It isn't easy.
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1 ReactionJust to better understand your situation:
What are your bone density scores?
no fractures?
Your age?
I am assuming that a good endocrinologist has done all the blood work to check for any conditions or diseases that might be playing a role?
If this is just a hormonal problem then you have several good drug options. the option of BHRT/HRT plus at least one supplement that straddles the line between drug and supplement, strontium.
That is at least a couple more options, so don't be concerned about running out of options for your disease.
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4 ReactionsI tried Evista and didn’t have a good reaction. Bisphosphonates gave me terrible GERD. I did Forteo and didn’t have much in the way of side effects and my scores improved from osteoporosis to osteopenia. I did was infusion of Reclast and had horrible jaw pain. I refused to do it again. That was around 2004, I think. It’s been a long time! I was able to maintain results until last year. I am not thrilled but opted to do Prolia. I am having my 3rd dose next month. The side effects have been better than anticipated. I even had the last one within days of my first Rituxan infusion. I won’t do that again because there was no way to know which was causing my side effects! But still they weren’t terrible! Prayers for no side effects with whatever you decide.
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7 Reactions@kathleen1314
My age is 78. -2.9
I can’t tolerate calcium in any form except thru foods.
My endocrinologist hasn’t ordered any specific blood tests except for the normal CBC, Chem Panel, Glucose, and Thyroid panels.
My Gyn offered me a bio identical implant which he claims works well for bones as well as other aging issues. It’s an implant you change every 6 mos. Downside once implanted nothing you can do if you have a bad reaction.
My endo said I’m too old for hormones.
I’m scared of doing nothing and not looking forward to side effects of these meds as I’ve had no luck with the others I’ve tried besides their cost.
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3 ReactionsI’ve done Tymlos and generic Forteo. I had some joint and bone pain on Tymlos and some constipation. After my insurance company pulled my pre-authorization I was switched to Forteo. I had similar joint pain but the constipation was so bad I had to stop taking it.
You might do better on Forteo - only one way to know for sure. It’s out of your system quickly so it may be worth trying.
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2 Reactions@fili123
Is that -2.9 in your spine or your femoral area? The spinal area has the ability to change quickly and is less dangerous because of this.
Well, there is no reason that you can't get enough calcium thru your food every day. You might use cronometer to check your levels; it might give you some peace of mind.
Your endo is not telling you the latest directive about hormones. There is no longer any age limit for hormones. There is concern about having a good doctor who will check and make sure that you meet all the necessary health concerns to use any medicine safely.
Have you checked out strontium citrate? Strontium citrate seems to fit within your needs exactly.
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1 Reaction@fili123 To help get your calcium from food you could try Seen Calcium Chews. They can be purchased from their website. They are made from dates, milk minerals, and almonds. Each chew contains 500mg calcium and 400IU Vitamin D, plus magnesium. They taste very good.
@daisy17
Thank u
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