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Profile picture for mcchesney @kathleen1314

@vostie
Maybe a lower dose would keep the pain down but not attack your platelets?

I am so glad LDN is helping with the pain though and a lower but not dangerous drop in platelets might be worth the day to day relief.

We all come to a time when we balance quality of life issues with dangers of life issues; most of us choose quality of life.

Plus, this seems to tell you that this is an autoimmune issue which means that you might be able to impact for the positive with other interventions.

What kind of pain are you experiencing?

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Replies to "@vostie Maybe a lower dose would keep the pain down but not attack your platelets? I..."

@kathleen1314 I have tremendous inflammation...so pain everywhere. It was so bad before LDN that I woke up every morning at 4-5 am and could not sleep even on anti inflammatory meds. I have Long COVID so it is causing my immune system to over react and it also made me allergic to most foods now so the littlest bit of gluten, sugar, dairy, etc inflames me more. My doc tried every med possible and nothing helped but LDN. I am going to lower the dose to see if the platelets quite cycling up and down.