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Metastatic Breast Cancer: Really want and need to connect with others
Breast Cancer | Last Active: Sep 3 11:21pm | Replies (60)Comment receiving replies
@wandering What are the infusions you speak of, what drug? I too have been on pills, and shots, and now Tamoxifen, but lowering the dose. The earlier drugs had detrimental effects on my heart (blood pressure) and legs, possibly giving me venous insufficiency & swollen feet.
I've about given up on hormone blockers, they just give me more ailments than I had.
Replies to "@wandering What are the infusions you speak of, what drug? I too have been on pills,..."
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@jardinera25
My infusion drug is Trodelvy. They have a pretty good website you can look at which calls for an infusion at 1 day, 8 days, a week off and another infusion. I am currently on a two week cycle. Not sure if I will stay on that since my tumor markers have gone up but my scans are really good. I have had some side effects but that is normal for me. My infusion day is pretty long since it takes about 3 hours but I can deal with it. I can take a nap during that time and I get an ice cream. I have about 1 hour between labs and the start of my doctor visit and infusion. I usually do some grocery shopping during that time. We live 50 miles from town so I maximize my time in town. I get a good heads up on my schedule (they set me up at least a week to two weeks in advance) so I can make arrangements for my trips into town. Best of luck with your treatments. PS: Gilead, the manufacturer of Trodelvy, has a patient assistance program, which may be able to help you with your copay. My copay was $2200 which for me is not affordable.