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Who is on Rinvoq for GCA vs Actemra
Polymyalgia Rheumatica (PMR) | Last Active: Feb 15 4:21pm | Replies (19)Comment receiving replies
@sandiw77
Your 25mg prednisone starting dose, while maybe OK for PMR, but it’s extremely low for GCA. For my GCA, I started at 60mg, and my understanding is that 50-60 is standard for GCA, unless there is vision involvement, in which case the dose may be considerably higher. My symptoms included pain at base of neck and jaw claudicaton, but not vision.
Replies to "@sandiw77 Your 25mg prednisone starting dose, while maybe OK for PMR, but it’s extremely low for..."
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@sjc123
I started at 60 too, even though I did have vision involvement. Besides the vision problems, I had jaw claudication, PMR, night sweats, persistent low grade fever, facial pain, and tenderness around my ears and on my scalp. Before starting the 60 mg of prednisone I had 3 daily IVs of 1000 mg of methyl-prednisolone. My vision turned out ok. Maybe they started me at 60 because I had already responded well to the 3 IVs.