@living_strong Telling you something that I have found important. I, too, have a faith base, and religious practice has been a big part of my life. Done many things with these 78.5 years. Pastor, truck driver, computer programmer, Real Estate loan and grant manager, football player, coach and official, teacher, restaurant bus boy, mechanic, professional student, seminar leader, etc. But I found my answer to my own disease, Hereditary Gelsolin Amyloidosis, in what I learned to do. I take care of the details of my health as best I can. After visiting 60-70 MDs, I started writing up my own story, which anyone can get free at httpjs://bit.Ly/1w7j4j8 under "Amyloid and Old Karl". But it was at that point I realized that the doctors I was seeing never looked at any of my records from their own labs. Mayo, OHSU, ... any of them. So I started searching by going back and re-reading my old lab reports, writing down summaries of them, and doing a lot of thinking about what was happening in my life. And I found some sources of terrific material. I bought "Amyloidosis - Diagnosis and Treatment" by the Mayo- Rochester staff, bought it from Amazon as an E-book. And a bunch of other stuff I got free from Helsinki University Hospital, and NIH and other places. As I went along I found a few kernels here and there, and put them in an orderly stack. And guess what? Because there are so many forms of Amyloidosis, I may not have the final exact diagnosis identified, but I know in my gut I am very, very close. And I know a heck of a lot more about what is wrong in my body than do most of the doctors I see. Medicare will not accept my diagnosis, but they were not accepting the others, anyway. Now, I do not expect that I know what your body is doing, but in many ways it sounds like mine. But you might look at my stuff and see if you can get some ideas. And, as a next resort, try the NIH Undiagnosed Disease program. All you need is a doctor whom you trust and will actually write a letter to them to get you into the program. I just lost a Clinical Trial I needed because my doctor was too lazy to write a letter saying only "I suspect Karl has Amyloidosis." )*&^%^$