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Irregular heartbeat issues

Polymyalgia Rheumatica (PMR) | Last Active: Feb 18 2:50pm | Replies (23)

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Profile picture for pah17 @pah17

@caroljeand My mother did not get treatment. I gave the abridged version of my mother's story. But you seem interested, so I'll try to encapsulate. In her late 50s/early 60's she began having different issues. At one point she had a rash around her middle and it was thought that she had shingles which was never treated. Then she had abdominal issues and eventually had her gall bladder removed even though her symptoms were atypical. She used to constantly rub at her wrists (? carpal tunnel) and often complained of hurting all over. At age 63 when stress was at an all time high in her life, she suffered sudden heart block and ended up with a pacemaker. Prior to that, I thought she was beginning to show signs of forgetfulness. As time went on her husband took her a few times for cortisone injections in her knees for fluid buildup. It was a slow decline for her. My brother and I would visit her yearly and in retrospect I remember that she had a wide gait and was very unsteady on her feet and complained of undefined pain. I'll always wonder if she suffered the effect of untreated Lyme disease which could have started with that rash that I was not able to see, along with the pervasive pain, heart block and dementia. She passed away in Assistive Living at age 73.
As an aside, one of her sisters became wheel chair bound and no one knew why. This generation was very private about discussing such things. I have a cousin who is in her 80s who has limited mobility and another who is my age (73) that is following my story because she's thought for a while that she has fibromyalgia. PMR is a new term to both of us. So there you have it - the reason genetics "may" be a factor in my case. I suppose it helps to know but it doesn't exactly change the course.

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Replies to "@caroljeand My mother did not get treatment. I gave the abridged version of my mother's story...."

@pah17
Always interested in people’s stories. Always trying to connect the dots.
When my mother was finally diagnosed after she had a concurrent parasite infection (maybe from drinking water or produce, who knows because we lived in the same house and I wasn’t affected)., and some strange bites with black centers thought to be from bites from outdoors. She was in such distress she was ready to die. Once she saw a doctor who was able to diagnose the parasite infection and the PMR things started to turn around. She lived to be 90 and died of a defective aorta.
Wondering if the 15 years of prednisone contributed to that 🤷🏻‍♀️?
Now I’m having an irregular heartbeat so I’m sure prednisone (or the tapering) is probably the culprit. Hope to get my results soon.