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Sputum Test submissions and outcome results
MAC & Bronchiectasis | Last Active: Feb 26 7:09pm | Replies (81)Comment receiving replies
@mariegrace If you cannot take antibiotics, nebulizing with 7% saline is a form of treatment. Do you know the bacterial count? Have you had susceptibility tests done? Do you have cavities? And are you nebulizing 2/daily with 7% saline. I have never heard of being diagnosed with MAC and it not being monitored. When I went to NJH, they had done a CT and sputum cultures to test for Susceptibility with a number of antibiotics along with bacterial counts. They did not recommend antibiotic treatment for me since bacterial count was low and CT's stable. However, in situations like mine-they "watch and wait". I send sputum samples every 2-3 months to NJH and get low E CT's every 6-12 months.
Replies to "@mariegrace If you cannot take antibiotics, nebulizing with 7% saline is a form of treatment. Do..."
@kathyjjb
I get chest CTs every 6 months and have been stable.
My pulmonogist at NYP Columbia Presbyterien is now head of the BE/NTB newly approved center.
I get periodic sputum tests for surveillance. I am also "watch and wait".
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@kathyjjb I have tried to find in a post to see if you mentioned how long you have been on 'watchful waiting' since you were diagnosed with a MAC at NJH and have a low load infection. Mine continues to be MAI.
As you know I have had a low count/low load of MAI from 2022 till now and I keep myself on 'watchful waiting' . My PFT is good, low load of infection and C Scan in November said worse plugging in lower lobe. I think, hopefully, I cleared the lower lobe due to what I brought up a month ago...hope so. I want a C Scan in April to see what is what. Other areas had improved per the C Scans.
Questions: How many times have you been to NJH since you started with them...in terms of their helping you to keep a watchful eye on it all, 'watchful waiting.?"
I take it you do not have mucus plugs showing on the C Scan, low load of infection and PFT is good?
Barbara