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Who is on Rinvoq for GCA vs Actemra
Polymyalgia Rheumatica (PMR) | Last Active: Feb 15 4:21pm | Replies (19)Comment receiving replies
Thanks so much for this thread! I was diagnosed with PMR/GCA in April 2023 following a sudden onset of severe hip pain. I literally woke up one morning and couldn’t get myself out of bed because the pain was so severe. I had immediate relief with 25 mg of Prednisone and my crazy high CRP & SED Rate went down considerably. The problem for me started as soon as I tried to taper. Pain came back in spades. Currently down to 8 mg of Prednisone with weekly injections of Actemra but I am not pain free. I am wondering if those of you on Rinvoq can share any insight on pain relief? Praying we all get the relief that we need to live happy, productive lives even in retirement! ❤️
Replies to "Thanks so much for this thread! I was diagnosed with PMR/GCA in April 2023 following a..."
@sandiw77
Your 25mg prednisone starting dose, while maybe OK for PMR, but it’s extremely low for GCA. For my GCA, I started at 60mg, and my understanding is that 50-60 is standard for GCA, unless there is vision involvement, in which case the dose may be considerably higher. My symptoms included pain at base of neck and jaw claudicaton, but not vision.
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@sandiw77
I never had PMR, only GCA. Once I started on prednisone, the my headache and scalp pain went away almost immediately. I have been pain free ever since.