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Who is on Rinvoq for GCA vs Actemra
Polymyalgia Rheumatica (PMR) | Last Active: Feb 15 4:21pm | Replies (19)Comment receiving replies
I was diagnosed with GCA in April of 2025. Started tapering off of prednisone after four weeks on 60mg. I began taking one 15 mg tablet of Rinvoq in June 2025 and have had no problem taking it and have not had any flareups. Took my last prednisone tablet on January 6. I saw my rheumatologist yesterday and asked how long I need to take Rinvoq. Her recommendation is to stay on it at least one year from the time you’ve completed prednisone. She also added that another rheumatologist might view this differently.
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Thanks so much for this thread! I was diagnosed with PMR/GCA in April 2023 following a sudden onset of severe hip pain. I literally woke up one morning and couldn’t get myself out of bed because the pain was so severe. I had immediate relief with 25 mg of Prednisone and my crazy high CRP & SED Rate went down considerably. The problem for me started as soon as I tried to taper. Pain came back in spades. Currently down to 8 mg of Prednisone with weekly injections of Actemra but I am not pain free. I am wondering if those of you on Rinvoq can share any insight on pain relief? Praying we all get the relief that we need to live happy, productive lives even in retirement! ❤️