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@kaki068 I’ve had the same feeling!! If any of the doctors that continually dismiss my pain severity could experience what I’m feeling they would not be dismissive! I’m so tired of being told keep doing what you are doing…and what I’m doing is not working. I miss my life when I was working at jobs I loved, dancing 3-4 times a week, going to plays, traveling. Now I sit at home in too much pain to do much of anything. When I do go out it’s so painful it’s not worth it.
I can’t take opioids do to digesting issues so the spinal and abdominal pain is severe and constant. Other meds don’t work. Shots haven’t worked.
Anything I’ve missed???

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Replies to "@kaki068 I’ve had the same feeling!! If any of the doctors that continually dismiss my pain..."

@dancer7000 I didn’t understand the digesting issues. There are million different kinds of narcotics and opioids and 1 million different kinds of digesting issues. I have IBS and damaged intestines, which have taken me six years to repair due to not knowing I was lactose intolerant our medication’s have lactose in them and they cause stomach aches so I switched medicines when I can and I take Lactaid pills when I can’t. That fixes the digestive issue part I also I’m on the FODMAP diet for IBS symptoms and been on that for five years and that 100% fixed all my digestive issue problems as long as I don’t eat things I’m not supposed to like garlic and onions. It took a bit of work to find the right opioid that allowed me to be pain-free and not acquire intolerance or a feeling of getting high. The trick was to take just enough to start that it knocked out the pain and I didn’t feel like I was on drugs. The nerve blockers didn’t work for me. I was lucky that I had doctors who were willing to go on the journey with me. I lead a very joyful and productive life and because I’m an artist, I value my isolation more than others. For others, I recommend that they find a passion in life that they can pursue in isolation and then they will wonder why they ever regretted isolation! As far as I am concerned, the best things are done in isolation cooking, reading, enjoying a movie, exercising and doing artwork… Not to mention catching up on emails. Find a way to engage that put you in contact with other people where you can offer your skills virtually.