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texasblooms avatar

No “meat” on the bottom of my numb feet.

Autoimmune Diseases | Last Active: Mar 2 2:44am | Replies (17)

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Profile picture for jacqincalifornia @jacqincalifornia

Thank you very much for starting this thread. I have the same type of pain and "no meat" is exactly how it feels. It's painful and it's debilitating. In my case this problem had a very sudden onset but none of my providers can suggest why. It's sad to contemplate the rest of my life dealing with this... Just thanks for the validation that you gave me by bringing this up.

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Replies to "Thank you very much for starting this thread. I have the same type of pain and..."

@jacqincalifornia I am so glad you shared your feelings, it can be hard to stay centered. AI has so many surprises, stop the train I want to get off. I wish there were magic words to take away the sadness of having to make lifestyle changes. My motto used to be "I can figure this out", not anymore. I want to write about what I've accomplished.

Now I make a list of priorities and try not to get distracted. Exercise, eat, when I feel good cook meals to freeze, household stuff, and then something from my fun list. It's an evolving list and outside activities are limited. I've retired and my list includes puzzles, reading, journaling, artsy stuff, centering with Jay Shetty, cards, talking with friends, movies, art museum on good days, lunch with friends, etc. Sadly my family is gone, my cousins live far away. I've redesigned the rooms I live in and now love my house, it makes me feel comfortable and happier.

I trust my Rheumatologist and feel he hears me. I hope you have found a doctor that makes you feel he is taking care of you. There is a plan and expectations are defined. Finding a medication mix that works is a lot of wait and see, I wish I could take a Tylenol and feel better in the morning.

I believe my symptoms are caused by Raynaud's but it may be a combo platter. My internist prescribed PT for balance and my bad knee. I feel sturdier, not the Leaning Tower of Pisa. I like going to the gym, now I have a smart workout. There's lots of home exercises I should do more often.

I prefer my fleece lined Uggs that have a higher back because my heel slips. After reading other posts we all have our favorite footwear. Replacement insoles are available. I have accumulated ten pairs, all bought on sale. The company that manufactures Uggs also makes Hoka. When I workout in sneakers but it's harder for me to walk because I can feel the cushioning. I cannot part with some of the pretty shoes in my closet.

All in all my attitude is improving, there are ups and downs but that's true for everyone.