← Return to Debating AIs vs Tamoxifen with fibromyalgia, severe arthritis, EDS

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Profile picture for lesliek808 @lesliek808

AIs are no fun, no matter which one you take. I also had fibromyalgia issues, pre-breast cancer, so I knwo exactly what you mean.

Anastrazole was totally awful and I could barely get out of bed after just taking it for a week, my muscles hurt so much. My oncologist switched me to Exemestane which is more tolerable. Less muscle pain, still have some fatigue but not as bad as before. Because of my age (over 60), Tamoxifen wasn't offered to me.

Did the oncologist offer you Tamoxifen as the very last option for endocrine therapy?

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Replies to "AIs are no fun, no matter which one you take. I also had fibromyalgia issues, pre-breast..."

@lesliek808 it's interesting how different our experiences are. I'm 72 with early-stage ILC & the 1st oncologist suggested an AI but at the cancer center where I ended up, that oncologist insisted on Tamoxifen because I have a history of border-line osteoporosis. His view is that because Tam helps bones, the benefits outweigh the risks in my case. I am taking a half-dose (10 mg) of Tam.