Any good treatments found for Nubeqa side effects?

Posted by leethird @leethird, Feb 13 2:57pm

Asking for any good treatments found for Nubeqa side effects ?
Such as diarrhea,lighteaded/balance,skin rash, night sweats, weight gain , maybe depression.
I’m taking 4 per day with six month Lupron injections.
Thank you

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

I have really noticed no side effects from nubeqa. The side effects you’re talking about are coming from Lupron. I’ve been on it for three years. Before that I was on Zytiga and it has terrible side effects.

Here is information on Lupron side effects

Due to their different mechanisms of action. ADT which includes Orgovyx, Firmagon, Lupron, Eligard, Prostap, Camcevi, Lucrin, Zoladex, Trelstar, Pamorelin, and Decapeptyl can cause numerous side effects. Actually due to a lack of testosterone.
Hot flashes
Fatigue
Muscle deterioration
Bone weakening
Brain fog
Depression
Weight gain
Joint pain
Difficulty in breathing

Not all of these side effects occur to everyone on the drugs. Most of them are just things you have to be aware of and circumvent. I run on the track twice a day, 1 mile at least, to help prevent bone weakening, fatigue and muscle deterioration. I also go to the gym three days a week (usually) and spend an hour with all different types of weight exercises. One thing that happens is people get a beer belly from the muscle deterioration, I do a lot of sit-ups to offset that.

Some people get depression but it is not common. It is easily treatable, according to people that have reported it on here and on Online Meetings I have participated in. If he has that problem Come back and ask for help, Or see a psychiatrist about doing something to relieve the depression.

Some people get no hot flashes at all. Others only have a few hot flashes and they are very minor. I had severe hot flashes for the first year on Lupron. As a hot flash was hitting I would feel a lot of fatigue. After a year, my oncologist prescribed a depo-provera shot every three months and it really stopped those hot flashes on Lupron. There are other hormones that can do this, speak to your doctor.
I know one person that says eating tofu every day really controlled his hot flashes, another person in this forum said the same thing. Tofu does have properties similar to endocrine hormones but a lot weaker. Can’t hurt to try it. Seems they ate it daily.

According to a doctor that spoke to a recent webinar, many people on ADT, if they are staying on ADT for an extended period or have become castrate resistant should be taking bone straighteners. I took Fosamax for six years and I’m now on Zometa. That along with calcium taken daily helps keep your bones strong. Ask your doctor about this.

I have never gained any weight while on ADT. I get on the scale every morning and base what I eat on what I weigh. Skip lunch at times.

REPLY
Profile picture for jeff Marchi @jeffmarc

I have really noticed no side effects from nubeqa. The side effects you’re talking about are coming from Lupron. I’ve been on it for three years. Before that I was on Zytiga and it has terrible side effects.

Here is information on Lupron side effects

Due to their different mechanisms of action. ADT which includes Orgovyx, Firmagon, Lupron, Eligard, Prostap, Camcevi, Lucrin, Zoladex, Trelstar, Pamorelin, and Decapeptyl can cause numerous side effects. Actually due to a lack of testosterone.
Hot flashes
Fatigue
Muscle deterioration
Bone weakening
Brain fog
Depression
Weight gain
Joint pain
Difficulty in breathing

Not all of these side effects occur to everyone on the drugs. Most of them are just things you have to be aware of and circumvent. I run on the track twice a day, 1 mile at least, to help prevent bone weakening, fatigue and muscle deterioration. I also go to the gym three days a week (usually) and spend an hour with all different types of weight exercises. One thing that happens is people get a beer belly from the muscle deterioration, I do a lot of sit-ups to offset that.

Some people get depression but it is not common. It is easily treatable, according to people that have reported it on here and on Online Meetings I have participated in. If he has that problem Come back and ask for help, Or see a psychiatrist about doing something to relieve the depression.

Some people get no hot flashes at all. Others only have a few hot flashes and they are very minor. I had severe hot flashes for the first year on Lupron. As a hot flash was hitting I would feel a lot of fatigue. After a year, my oncologist prescribed a depo-provera shot every three months and it really stopped those hot flashes on Lupron. There are other hormones that can do this, speak to your doctor.
I know one person that says eating tofu every day really controlled his hot flashes, another person in this forum said the same thing. Tofu does have properties similar to endocrine hormones but a lot weaker. Can’t hurt to try it. Seems they ate it daily.

According to a doctor that spoke to a recent webinar, many people on ADT, if they are staying on ADT for an extended period or have become castrate resistant should be taking bone straighteners. I took Fosamax for six years and I’m now on Zometa. That along with calcium taken daily helps keep your bones strong. Ask your doctor about this.

I have never gained any weight while on ADT. I get on the scale every morning and base what I eat on what I weigh. Skip lunch at times.

Jump to this post

@jeffmarc Jeff- here is a puzzling question: so exercise and wt training induce the body to produce testostrone..which we are on ADT to reduce testostrone...is that not counter productive to the ADT..OR is the testostrone production so short lived that it does not get enough into bloodstream to cause cancer cell surge..

Just curious..I have found my doctors generally dont like alot of Q and A ..just facts as they relate to me.. nothing hypothetical..

REPLY
Profile picture for xahnegrey40 @xahnegrey40

@jeffmarc Jeff- here is a puzzling question: so exercise and wt training induce the body to produce testostrone..which we are on ADT to reduce testostrone...is that not counter productive to the ADT..OR is the testostrone production so short lived that it does not get enough into bloodstream to cause cancer cell surge..

Just curious..I have found my doctors generally dont like alot of Q and A ..just facts as they relate to me.. nothing hypothetical..

Jump to this post

@xahnegrey40
If you are on ADT, your testosterone is usually below five. You really don’t have to worry about anything unless it gets above 20 or some studies 50. That’s just not going to happen from doing exercise. The ADT will get it right back down. I exercise three days a week at the gym and I sure don’t build any muscle that’s visible, but it keeps the one I’ve got stronger. I get monthly testosterone tests and they are always below five.

REPLY

Amen! Well said jeffmarc

REPLY
Profile picture for jeff Marchi @jeffmarc

I have really noticed no side effects from nubeqa. The side effects you’re talking about are coming from Lupron. I’ve been on it for three years. Before that I was on Zytiga and it has terrible side effects.

Here is information on Lupron side effects

Due to their different mechanisms of action. ADT which includes Orgovyx, Firmagon, Lupron, Eligard, Prostap, Camcevi, Lucrin, Zoladex, Trelstar, Pamorelin, and Decapeptyl can cause numerous side effects. Actually due to a lack of testosterone.
Hot flashes
Fatigue
Muscle deterioration
Bone weakening
Brain fog
Depression
Weight gain
Joint pain
Difficulty in breathing

Not all of these side effects occur to everyone on the drugs. Most of them are just things you have to be aware of and circumvent. I run on the track twice a day, 1 mile at least, to help prevent bone weakening, fatigue and muscle deterioration. I also go to the gym three days a week (usually) and spend an hour with all different types of weight exercises. One thing that happens is people get a beer belly from the muscle deterioration, I do a lot of sit-ups to offset that.

Some people get depression but it is not common. It is easily treatable, according to people that have reported it on here and on Online Meetings I have participated in. If he has that problem Come back and ask for help, Or see a psychiatrist about doing something to relieve the depression.

Some people get no hot flashes at all. Others only have a few hot flashes and they are very minor. I had severe hot flashes for the first year on Lupron. As a hot flash was hitting I would feel a lot of fatigue. After a year, my oncologist prescribed a depo-provera shot every three months and it really stopped those hot flashes on Lupron. There are other hormones that can do this, speak to your doctor.
I know one person that says eating tofu every day really controlled his hot flashes, another person in this forum said the same thing. Tofu does have properties similar to endocrine hormones but a lot weaker. Can’t hurt to try it. Seems they ate it daily.

According to a doctor that spoke to a recent webinar, many people on ADT, if they are staying on ADT for an extended period or have become castrate resistant should be taking bone straighteners. I took Fosamax for six years and I’m now on Zometa. That along with calcium taken daily helps keep your bones strong. Ask your doctor about this.

I have never gained any weight while on ADT. I get on the scale every morning and base what I eat on what I weigh. Skip lunch at times.

Jump to this post

@jeffmarc
Jeff, this was really helpful and much appreciated. You sound like you’ve figured it out . Goodonya !
Thank you , Lee

REPLY
Please sign in or register to post a reply.