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Told I had kidney disease at stage 3
Chronic Kidney Disease (CKD) | Last Active: Feb 16 9:55pm | Replies (68)Comment receiving replies
@cheyne thanks for your post, knowing what color urine should be, vitamins, do our own research and diet, avoiding certain meds sounds like a do it yourself journey. I'm at stage 3b My Dr. Who only referred me to a nephrologist after I showed how concerned I am. I am leery of meds side effects. Thanks, Donna
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@ddon
Hi,
I'm past the worrying and am just mindful not to do anything stupid that can affect my kidneys.
I have just dropped to GFR39 at age 73. I'm pretty sure Autonomic polyneuropathy is going to get me way before my loss of kidney function will. I live by the colour of my urine, it tells me when I need to be drinking more or not so much and that is what keeps the kidneys functioning.
What you need to watch out for is Dr's that try to mitigate your health without consulting you. I have made it plain to my Dr's that won't happen without my consent, ask first. I usually make suggestions to my Dr's and they can agree or just roll their eyes! I do more research about my health issues than they do, so I believe I know as much or more about my situation then they know or appreciate. I find the younger Dr's are the ones more likely to want to do more as they still think they can cure the world. When they eventually find that I'm incurable and untreatable they drop me like a hot potato. I still haven't found out exactly why I get the symptoms I do but I'm getting closer, it is some sort of Autonomic problem caused by a serious bout of Campylobacter which very nearly killed me. Very much like long Covid can cause, except I predate Covid.
Cheers