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The waiting is terrible: Husband has Stage 4 prostate cancer
Prostate Cancer | Last Active: Mar 19 7:20am | Replies (80)Comment receiving replies
@laffcris
Hello, my husband was just diagnosed with aggressive cribriform, Gleason 9 prostate cancer and we live in Chesapeake, VA. We have a SMAC PET scan scheduled for March 4 at Duke, but everything seems to be slow moving. Do you have any oncology recommendations based on your medical journey? The waiting is absolutely awful. My husband is 61 and I never thought this was possible. Thank you.
Replies to "@laffcris Hello, my husband was just diagnosed with aggressive cribriform, Gleason 9 prostate cancer and we..."
@scary1
Your husband should have genetic testing since he got prostate cancer so young. I got it at 62 because I have a father that had it and a mother that gave me a genetic problem called BRCA2. If people and his family have had breast or prostate or pancreatic cancer, this could be genetic related. Do you want to know this because your children could have inherited it? Genetic testing is covered by insurance.
I think you’re trying to say you are going to have a PSMA pet scan. That’s the one people get to find out if cancer has spread in their body. The results of this test will tell whether surgery makes sense or should you have radiation or even triplet therapy?
A real good doctor at duke is
Duke
Dr. Dan George
I really highly respected oncologist in Washington DC would be a good one to see
Sibley Washington DC
Dr. Channing Pallor oncology
Dr Deville Radiation oncologist
Prostate cancer is very slow growing, so you are not going to miss out by getting a second opinion and spending a few months trying to figure out the best thing to do.
One thing people don’t realize is that prostate cancer these days is not usually a deadly disease. It is more a chronic disease.. I know many people with Gleason nine that are still around after 20 or 30 years.
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@scary1 I feel for you and will message you privately.
I'm near chapel hill/durham. we go to UNC chapel hill and see a good oncologist there but I read that DUKE is good too.
If you want to text or even meet while down here, let me know.
We're a year into this nightmare and it hit me differently now actually, I think we were in shock for so long. My husband is doing GREAT btw so treatment works!