Connect
← Return to 5 yrs post covid. Is there any help out there?
Discussion
5 yrs post covid. Is there any help out there?
Post-COVID Recovery & COVID-19 | Last Active: Feb 23 2:55pm | Replies (97)Comment receiving replies
@misslauren
Its awful. And family and friends don't understand. I am not giving up yet. I just went for 4 more blood test today. $155. Out of pocket. Doctors won't write us prescriptions to get blood work because they Don't believe in Long Covid. I wonder if any Doctors have long covid? Who do they see?
Best of luck to you and all of us.
Replies to "@misslauren Its awful. And family and friends don't understand. I am not giving up yet. I..."
Connect
@kevtan I would recommend finding an NP in your medical community. They can be licensed with their appropriate training to just everything a doctor can do except surgery (state law dependent). NP spent time to go through my symptoms and not just spend the 10-15 min. medical symptom review. NPs can order labs for investigations of unknowns of Long Covid. My NP became my advocate. When I asked her 'how is my immunity system doing' she ordered: Complete T-Cell work up. T-Cells and T cytotoxic cells, ratios and absolutes include: CD 3, CD 8, CD 4, CD 16, CD56. That revealed my immune system was in overdrive and it was related to my body's inability to clear the Covid spike proteins attached to my cells.
2. SARS-CoV-2 Antibody Profile Test: CoV-2 Antibody Profile. Looking for Spike AB Dilution (normal range < 0.8 U/ml). (Note: some patients called this test D Timer. Test looks for micro-clotting and provides a 'numeric value' for bloods spike protein counts. Mayo Clinic reported in their studies most LC sufferers had counts of 17,000 to 25,000.