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@pah17 once on Prednisone I could function normally but felt the intensity of the steroid and knew it was destructive (last time I went through this 10 years ago it gave me a solid case of osteopenia—I was in my early 60s and hadn’t had it before). So I was eager to wean from prednisone ASAP. It took 8 months last year to complete a slow weaning. SWas it a side affect or just aging that over this period last year my cataracts grew from barely any to operable, my hair thinned so that I had precancerous growths on my scalp, and we haven’t checked my degree of osteopenia or other systems where prednisone hits.
I enjoyed 3 months off Prednisone at the end of 2025 when I started getting symptoms of PMR again. My Dr ordered blood tests to confirm my SED rates were elevated and the blood something rate (I forget the other blood test’s name). So back to 20 mg Pred. I am now weaning again, trying to taper by percentages @ a steady 2-week dose decline. I am lousy about my diet and exercise—really need to get on that because there’s a direct correlation between my AM aches and pains and sugar intake, even on Prednisone.
A friend pointed out that all my side effects could also be attributed to aging (I’m in my 70s now). Could be! But I’d still like to get off prednisone and maintain my life drug-free as much as possible. Live healthfully. Good plan! It’s a new day. Thanks for the prompt.

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Replies to "@pah17 once on Prednisone I could function normally but felt the intensity of the steroid and..."

@kereno Thank you for sharing your experience. My Rheumatologist thought that we could do a fast taper off 15 mg/day, but that didn't work. So, I'm on 14 mg. for now.
I'm 73 and I already have osteoporosis. I take Boniva once every 30 days. My last bone density scan showed marginal improvement. Needless to say, I don't want to lose any ground there. I also have small fiber neuropathy which hadn't been affecting my ability to keep moving by walking 1-3 miles (when I'm not lazy). But I think PMR is somehow worsening the discomfort beyond numbness and tingling. I also have a new diagnosis of AFib and I'm now on Eliquis (blood thinner) which means that I cannot take NSAIDS for pain. Tylenol is OK.
Yeah. Aging. Here we are, I guess. Glad I made it into my 70s at least. My 102 year old friend reminds me that I'm just a baby. She's sharp as a tack, but needs assistance walking. And I know she's riddled with pain from head to toe. But she keeps active, lives independently and maintains a wide circle of friends and family. She helps me keep things in perspective.
All the best to you.