@dprodriguez Thank you, that’s very kind of you to say. I’m in the Chicago area. I met my primary PT through Shirley Ryan AbilityLab (but I did not do their chronic pain program).

It’s been years I’ve had chronic pain, so I think gathering the knowledge was a mixture of persistence, research, and honestly—luck. I had to do a Lot of independent research.

I’m close to major medical centers sort of like you, and it’s still so hard to find people, especially now that the people who treat these conditions all seem to be going concierge.

This article is super-old, but this is what changed my approach: https://peterabaci.com/2012/12/07/a-radical-shift-to-better-pain-relief/. And then I read his book.

After a series of bad PTs, unhelpful consults, and misdiagnoses and missed diagnoses (including two stints at two different Mayo campuses), I eventually got to a PT who specialized in chronic pain and found a PCP also knowledgeable about pain neuroscience. She was an integrative physician and a DO, so I think having that approach helped because it gave her a bigger toolbox. We maxed out the medical treatments we could (meaning like, medications), of which there aren’t many great options, and the rest of the interventions fell into the bucket of PT, pain neuroscience, or mind-body practices aimed at retraining how the body processes pain, not “fixing” it or muting it.

Honestly, I got the best mileage out of working with PTs. Are you able to find a PT who specializes in chronic pain specifically? Like someone who treats things like fibromyalgia, EDS, or POTS. They’d usually have the knowledge base.

My primary conditions are POTS and EDS (and I realize this is the neuropathy forum). I can think of at least one PT here who offers online self-guided programs to help with chronic pain, but she primarily works with people with EDS. It would be applicable to most people with any chronic pain though. Happy to share more about that if you’re interested: https://www.chimera-health.com/

I did her Ground Control and Regulate programs.

Curable is an app-based program I’ve heard really good things about. And I used the Recognise apps for something called graded motor imagery. To my surprise, it helped my neuropathy. I know this reply is super long, so if you have questions on any of it, feel free to let me know.

Not sure if I answered your question lol. My PCP prescribed LDN. When she left her position =*(, I looked into online programs that prescribe it, but didn’t end up needing to use any because thankfully I found a new PCP willing to prescribe it.