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← Return to Brinsupri experience after 3+ months
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Brinsupri experience after 3+ months
MAC & Bronchiectasis | Last Active: 30 minutes ago | Replies (245)Comment receiving replies
@patti55 You have a smart doctor. My pulmonologist, who is frequently involved in clinical trials, told me she read ALL of the test reports/research results. According to her, it appears from the clinical trials that 10mg is as effective for most people as the 25mg, but with fewer side effects.
She has only prescribed for a handful of patients (not me) who were having 5 or more exacerbations per year. When I see her in May, we are reserving part of the appointment to talk about how Brinsupri seems to be working in the real world. She is a strong supporter of Mayo Connect and wants to hear how our members are doing and share how her patients are responding.
Replies to "@patti55 You have a smart doctor. My pulmonologist, who is frequently involved in clinical trials, told..."
@sueinmn interesting to hear that your pulmonologist also said that the 10 mg dose showed almost as much benefits. That is what my Stanford md said as well. It makes me feel not as bad that my body does not seem to tolerate the 25 mg. Thank you so much for posting that, it makes me not as disappointed that I can’t take the higher dose.
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@sueinmn Nice to hear your doctor is a strong supporter of Mayo Connect, that says a lot. Lucky you. Thanks for sharing that information about her understandings.
I have been told directly, or it has been inferred, by a couple of the pulmonologists I have seen..."stay away." Sad.. I wonder if they have ever even taken time to see how we handle all on the Mayo???????
Not sure if you read what I said above but what you posted confirmed, somewhat, my thoughts regarding how to possibly start the Brinsupri. With many things in life we are sometimes, and many times, told and suggested to start out either slow or with low dosages and then gradually build up if needed and able to.
Barbara