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Colleen Young, Connect Director avatar

Living with lung cancer - Introduce yourself & come say hi

Lung Cancer | Last Active: Apr 22 8:17pm | Replies (1154)

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Profile picture for dunsmorej54 @dunsmorej54

@ohiogal8860 palliative care has been with us since he found out and they prescribe all of his medications they are such a big help they always work with us to make sure he's staying comfortable and dealing with everything. The immunotherapy he has been getting since he started chemo is keytruda...he no longer can do chemo but has continued the immunotherapy he's on his 9th round of it and she keeps saying she has to monitor to see if everything goin on are side effects..he's been sick a lot...he does take nausea meds first thing in the morning with some toast before he takes any other meds. He sweats and is freezing all night...last night he had to change shirts 4 times because he soaks right through them...his cough is out of control and this goes on for weeks at a time and the cancer Dr keeps saying he needs to let them know but when we do she gets upset because it's getting in the way of his treatments so we are confused. After his palliative care appt a few days ago they suggested that he transfer to the oncology dept they just opened at the hospital here it's affiliated with the one he currently goes to but we travel a half hour to get there so maybe a new Dr and having them try a different drug would be a good direction to go....he told palliative care that the current oncologist is the whole reason he wants to stop doing his treatments.

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Replies to "@ohiogal8860 palliative care has been with us since he found out and they prescribe all of..."

@dunsmorej54, I am sorry I misunderstood. I had understood palliative care to be end of life interventions..making one comfortable without any ongoing medical treatments. Almost used interchangeably with hospice.
I hope your bf will advocate for himself and seek out another oncologist, if that will make him more comfortable in his decisions and treatment, if that is what he chooses. God bless you both.