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am I exercising too much with a 4.3 ascending aortic aneurysm?
Aortic Aneurysms | Last Active: Feb 25 8:33pm | Replies (107)Comment receiving replies
Hi, I'm glad I came to this site so I can meet my soul mates with aortic aneurysm! Not a club we want to be in, but support helps!
As a 23 year long Coumadin user, also due to mech.valve, Im wondering why you need to stay worried about thin blood as long as your INR is in range. I'm assuming your cardiac team is addressing both issues? Have they said you are at a higher risk for the tear to "bleed out", and if so, have they adjusted your range for your INR, to maybe allow it to stay a little bit thicker?
After 23 years with these issues and all the issues that always have to be arranged around a good Coumadin level...I know that Dr's sometimes have blinders on. They may only focus on your need for the meds, but not it's affect, either real, or just an anxious worry( which I totally get you would be anxious, me too!)
Have you discussed your worry and found out if they can offer a solution that eases your fear a little.
I am currently(2/12/26), living with some off putting readings ftom an EKG in Dec, that indicate mine may have enlarged again( it waa 4.3 at last echo). Due to shoulder replacement I desperately needed and was already scheduled for, I didnt make my scan appt. sooner than March 31. To double check. And like you, I'm anxious abt it but diff.reason. I was already a little out of breath when doing stairs, alot of yard work, etc. But since my surgery I am def.more out of breath doing things, especially any thing that requires me to lean over..And with cats, everything I do for them, requires leaning over, lol.
So I will try to move my echo up, but in the meantime. I hate this anxiousness!
I'm sorry I wrote so much, its always what I'm teased about! Guess I'm just glad I found my PEOPLE!😊
If I don't hear from you, it was nice to read your history/ issues with the Aneurysm. And I hope the outcome is good!
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@patti1416 I have been on Coumadin for years and my aortic artery aneurysm is at 3.9 until I have it checked in 2 months. Yes it has a
“Tear “ in it. My cardiovascular surgeon doesn’t seem to be too concerned about it.
I don’t like being on Coumadin due to my mechanical aortic heart valve with a torn aortic artery aneurysm. My last INR was 3.0 last week borderline high end. Thin blood with a torn aneurysm bothers me more than it does my cardiovascular surgeon apparently. He must know when it’s time to correct it? I don’t know. A few years ago they found a 3.7 cm with a tear in it during an unrelated CT scan and they were like “ oh my God we need this repaired now “. They dressed me back up and threw me into an ambulance for a quick ride to a higher rated trauma hospital and when I got there they took an immediate CAT scan and confirmed the torn aneurysm but the cardiologist for that hospital said “ well, yes you have one but it’s not bleeding and doesn’t need to be treated today” “ but you will need to come back later under a non emergency appointment “.
That was it. I was like “ look, it’s torn, and I’m Coumadin with an NRI that is always variable in thinness “ and he went on to another patient. I have great insurance so it wasn’t that! First thing I know I was being given my discharge paperwork and waiting for an ambulance to take me home. All because it wasn’t bleeding at the time.
One hospital took a fit and the second one was like “ well, it’s not bleeding!”
Are they waiting for an all out rupture that can be fatal quickly?
It looks like if you have a torn aneurysm but you’re not fatality bleeding because it’s less than 5.0 cm
(The golden number) you can be ignored other than a once in a year quick sonogram? Granted, it’s far from a 5.0 cm but why wait for a rupture??
These doctors aren’t so bright. My original cardiologist said “I don’t see anything!!!” The second cardiologist treated it like “ oh wow, we need to operate” the third cardiologist says yup it’s 3.7 cm and said “ see you next year “ my current cardiologist says “ it’s at 3.9” “see you in 6 months “.
It’s not like I had a poor insurance plan. My insurance covers everything 100% so why wait? Is it because I’m on Coumadin and they are afraid to go in?
That’s not an excuse. I’ve had surgery that required a 5 day hold on Coumadin and bridging with Levonox . So what’s the big deal?
Are they afraid that I may bleed to death and my family will sue him and the hospital for “ killing “ me?