← Return to Has anyone experienced ALL of these symptoms after Covid?

Discussion
Comment receiving replies
Profile picture for lkirnbauer @lkirnbauer

@janeaddams I see you’ll be visiting the Long Covid Clinic in Chicago in April. Good luck! I went there as I also have Long Covid and Dr. Koralnik, the Chief of Neuro and Infectious Disease told me after seeing me for maybe 10 minutes, that I will never get my taste or smell back. He didn’t have any reason to back up that statement, just stated it to me as if he was telling me to have a good day! I left their office without any HOPE and have had to lift myself up off the floor after that! I was depressed and angry, not a good combination. I hope that you have better luck and that Dr. Koralnik has learned a few things since I was there!

Jump to this post


Replies to "@janeaddams I see you’ll be visiting the Long Covid Clinic in Chicago in April. Good luck!..."

@lkirnbauer
I did visit that clinic, but it was in 2024. Originally set for 4/1, they canceled and rescheduled for 9/11/24, a year and a half ago. Not much came from it; a anomaly in bloodwork which I'm following up on with a hematologist, a recommendation for "speech therapy" (aka cognitive rehab) at Shirley Ryan which I did for eight sessions, pretty useless, and a prescription for Amantadine which I never took, cuz side effects and little good research. I've continued with the NW/LC virtual monthly support group and find it helpful to learn how people manage, but really believe we were just research subjects. Was told I didn't need to come back, but I've continued to meet virtually every few months with the PA, Aasheeta Bawa, just to chat and see if any new treatments have been found ... so far nothing they recommend. I've learned everything I know about LC (going on year three for me) from this forum and from my own research. I do know others here have reported recovery of smell and taste, in spite of what Dr. K. told you. He spoke at a support group in the past few months .. he said "most people get better over time; we don't know why." He does have a way with words! Hope you've seen some improvement ...